You re not alone. I ve been type 1 for 28 years now (diagnosed on my 18th birthday). Working shifts was a killer for me. I have neuropathy and retinopathy. We re all different and some manage it better than others. It’s not too late to make improvements though. Have you done a DAFNE course? Also ask your diabetes nurse about getting on a continuos glucose monitor trial. If your control is erratic but you are trying and doing enough tests you should qualify. You can self fund but it’s very very expensive. A trial may only give you a week or two with a cgm but it will allow you to get real time data on your blood sugar and which way it’s heading.
I hope your consuktants are screening for other autoimmune autoimmune diseases such as thyroid as diabetes does come with an increased risk of developing another autoimmune disorder which could also impact your control. My experience has been that hospital diabetes nurses (Diabetes Specialist Nurse or DSN) are absolutely the ones to go to. Practice nurses have been shoe horned into the role but DSNs are diabetes nurses first and foremost. It was a diabetes nurse who helped me with another related autoimmune disorder which all the gps and consultants hadn’t and wouldn’t consider. Do you have a good hospital clinic?
Veni vidi dormivi
